Hardcore Migraine Sufferers Unite

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yeah there’s also something called like… anti-CRG? something like that? that you can only have if you’ve tried all the other shit.

Humanitarian Pause (Tracer Hand), Wednesday, 20 March 2024 20:13 (two months ago) link

It depends, at least in the US. Ubrelvy is an anti-CGRP medication, and I didn't need to fail all the others to be prescribed it, but if I want one of the preventive ones like the aimovig shot, then I will have to try topomax and an antidepressant first.

Lily Dale, Wednesday, 20 March 2024 21:04 (two months ago) link

what was it like?

Humanitarian Pause (Tracer Hand), Wednesday, 20 March 2024 21:36 (two months ago) link

one month passes...

My new migraine doc has also suggested some or all of the following, as preventative, in addition to the Candesartan

- Magnesium supplements. Magnesium citrate, glysinate, oil spray or epsom salts

- Vitamin B2 (riboflavin) - 1 400mg tablet once a day

- Co-enzyme Q 10 - 100mg THREE times a day for a minimum of 3 months

- Vitamin D - 3000-5000iu daily

- Migraea probiotic

Needless to say I hate my migraines and want them gone but I am a little reluctant to start a regimen of like many pills every day

Humanitarian Pause (Tracer Hand), Sunday, 5 May 2024 13:43 (four weeks ago) link

Eletriptan, which last longer and works faster. They are also recommending that whenever I take a triptan I also take 900mg of aspirin, two paracetemol and 10mg of Metaclopramide , which will act to flush the triptan away from my stomach and into my bloodstream more quickly. I am excited!

I got a chance to try this new regime and it worked great - headache gone in about 40 minutes

Humanitarian Pause (Tracer Hand), Friday, 10 May 2024 13:37 (three weeks ago) link

My migraine doc also put me on a lot of supplements - mainly Sam-E, Boswellia, and B-12 - but I'm really bad at taking any except the Sam-E regularly. It also turns out I'm sensitive to magnesium and it makes my heart skip, which is frustrating as it's in a lot of supplements in trace amounts, so if I take too many assorted supplements at once I start to feel it. So the many supplements approach is not for me, but I understand it works for a lot of people. My uncle swears by riboflavin.

Lily Dale, Friday, 10 May 2024 13:45 (three weeks ago) link

I've decided that I'm only going to take one supplement at a time so that I can tell if any of them have any effects. I've started with the riboflavin and it has turned my pee EXTREMELY yellow.

Humanitarian Pause (Tracer Hand), Friday, 10 May 2024 14:03 (three weeks ago) link

(No other effects noted...)

Humanitarian Pause (Tracer Hand), Friday, 10 May 2024 14:07 (three weeks ago) link


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